About This Charity
Barth syndrome is a rare life-threatening genetic disorder that affects boys. We support families and provide them with the tools for survival and quality of life. We work closely with the scientific, medical and educational community to promote early diagnosis, research and treatment. Membership is free and provides access to specialised multi-disciplinary clinics and international conferences.
Our Analysis
The organization contributes significantly to health and wellbeing initiatives. Community engagement forms a cornerstone of this charity's approach.
Activities & Impact
Barth syndrome is a rare life-threatening genetic disorder that affects boys. We support families and provide them with the tools for survival and quality of life. We work closely with the scientific, medical and educational community to promote early diagnosis, research and treatment. Membership is free and provides access to specialised multi-disciplinary clinics and international conferences.
Financial Information
The latest reported income for this charity is £15,879.
Financial Analysis
As a grassroots organization, this charity demonstrates efficient use of limited resources.
Detailed financial history is not available in our database. For the most up-to-date financial information, please check the Charity Commission website.
Gift Aid: Yes
Location
N/A