About This Charity
Provides support to children and adults affected by 1p36 deletion syndrome and their families in the UK, in particular, but not exclusively, by arranging a conference every other year to share research and practice concerning management of symptoms, treatment and sharing educational content about 1p36 deletion syndrome.
Our Analysis
Focusing on younger generations, this charity invests in our future.
Activities & Impact
Provides support to children and adults affected by 1p36 deletion syndrome and their families in the UK, in particular, but not exclusively, by arranging a conference every other year to share research and practice concerning management of symptoms, treatment and sharing educational content about 1p36 deletion syndrome.
Financial Information
The latest reported income for this charity is £16,812.
Financial Analysis
As a grassroots organization, this charity demonstrates efficient use of limited resources.
Detailed financial history is not available in our database. For the most up-to-date financial information, please check the Charity Commission website.
Gift Aid: Yes
Location
2 Lambardes, New Ash Green, LONGFIELD, Kent, DA3 8HX